- Inflammatory bowel disease
Improving the Quality of Care for Adults with Inflammatory Bowel Disease (IRB no. 43564)
This study is designed as a program to collect health information from adults with inflammatory bowel disease (IBD) to better understand the disease and improve the quality of care for individuals living with IBD. The program will focus on a new way to manage IBD care, referred to as a dashboard, which will allow for more informed and productive communication between patients and providers.
Health information will be collected for quality improvement initiatives and research from three sources: medical records at the IBD Care Center, information that the provider enters into the dashboard, and information that the patient enters into the dashboard. Data will be maintained in a secure database.
Key Inclusion Criteria:
- At least 18 years old
- Diagnosis of Crohn’s disease, ulcerative colitis or IBD undetermined
- Accept conditions of informed consent
- Affiliated with a participating IBD care site
Key Exclusion Criteria:
- Non-English speakers
Gil Melmed, MD