Adults living with a congenital heart defect

Most of the time congenital heart defects (CHD) are often diagnosed and treated during childhood, but at least 10 percent of all patients will have a diagnosis that isn’t made until adulthood. There are currently over one million adults living with congenital heart disease in the United States with the adult population expected to grow by 5 percent annually. As a result of continued improvements in the medical and surgical care of patients with congenital heart defects, there is an increased lifespan for the patients that once may have had a limiting life.

It’s important for patient with CHD to routinely (yearly, at least) meet with their physician who specializes in the care and long-term management of patients with CHD, keeping in mind that a cardiologist with additional subspecialty training in congenital heart disease is the best partner for managing their lifelong condition.

The healthcare team in the Congenital Heart Program at Cedars-Sinai will work with patients on a variety of quality of life issues, such as:

  • Living a productive life
  • Activity and exercise to promote a heart healthy lifestyle
  • Nutrition and diet
  • Family planning and reproduction