U.S. CTEPH Registry

Condition/Intervention

  • Pulmonary hypertension


Study Name

U.S. CTEPH Registry


Summary

This purpose of this research registry is to collect clinical information about patients diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH). Researchers aim to learn more about the CTEPH disease process and treatment of patients by sharing information among pulmonary hypertension centers throughout the U.S.

The development of a national registry is an important element in the advancement of the understanding of CTEPH and improvement in the care of patients with this debilitating disease.


Key Inclusion Criteria

  • Patient must be a permanent resident of the United States.
  • Radiologic confirmation that chronic thromboembolic disease is the cause of the pulmonary hypertension
  • Patients must be diagnosed with CTEPH within six months of being considered for study eligibility.


Key Exclusion Criteria

  • Patients with an underlying medical disorder with an anticipated life expectancy less than two years

Please see complete list of inclusion and exclusion criteria.


Principal Investigator

Victor Tapson, MD


Study Coordinator and Contact

Lucy Garcia
Phone: 310-248-7134
Email: lucilla.garcia@cshs.org


Status

Active


IRB No.

39670